Thursday, June 12, 2008

Childhood Cancer Act Passes Through US House of Representatives

This just came in from the folks at CureSearch:

Dear Friends:

A great day in the fight to conquer childhood cancer, our legislation just passed the U.S. House! The final vote tally was 416-0.

Please post and disseminate as far and wide as you can. We at CureSearch are grateful to our wonderful grassroots community for spreading this wonderful news!

The more awareness we do now, the easier we will make it for passage in the Senate.


Here is the CureSearch press release:

CureSearch Praises Passage of the
“Caroline Pryce Walker Conquer Childhood Cancer Act”
in U.S. House of Representatives



Children with Cancer and their Families to Benefit from Landmark Legislation

June 12, 2008 (Bethesda, MD) – CureSearch National Childhood Cancer Foundation salutes the United States House of Representatives for passage of H.R. 1553, the “Caroline Pryce Walker Conquer Childhood Cancer Act,” which promises to significantly increase federal investment into childhood cancer research.

During markup of the legislation, the bill was renamed the Caroline Pryce Walker Conquer Childhood Cancer Act of 2008, in memory of Caroline Pryce Walker, daughter of Congresswoman Deborah Pryce (R-OH), who succumbed to neuroblastoma in 1999 at age nine.

The bill authorizes $30 million annually over five years, providing funding for collaborative pediatric cancer clinical trials research, to create a population-based national childhood cancer database, and to further improve public awareness and communication regarding available treatments and research for children with cancer and their families.

“For far too long, children suffering from pediatric cancer have gotten short shrift on federal resources,” said Pryce, original author of this groundbreaking legislation.

“The bill we passed today dramatically expands federal investment into childhood cancer research and education, and will make an historic difference in the lives of the more than 12,000 children who will be diagnosed with cancer each year. A nation with our resources, our scientists, our committed doctors and oncologists, and our inherent and insuppressible fighting spirit can and should do more to put an end to so much suffering.”

Congressman Chris Van Hollen (D-MD), one of the original co-sponsors of the Carolyn Walker Pryce Conquer Childhood Cancer Act, stated that conquering childhood cancer has transcended partisan politics, and addresses a critical national issue that is finally receiving the attention it deserves.

“I am pleased that the House passed this important legislation, which will bring us one step closer to eradicating pediatric cancer,” said Van Hollen. “This bill will enhance and expand pediatric cancer research activities at the National Institutes of Health, establish a pediatric cancer registry, and increase informational and educational outreach efforts to patients and families affected by pediatric cancer. No child should have to experience and suffer the effects of cancer, and no parent should have to see their child suffer.”

CureSearch supports the life-saving research of the Children’s Oncology Group, the world’s premier cancer research collaborative. Treating 90% of children with cancer, the Children’s Oncology Group includes more than 5,000 experts in childhood cancer research and treatment, located at more than 200 leading children’s and university hospitals across North America.

"The Caroline Pryce Walker Conquer Childhood Cancer Act allows for translation of the very best research discoveries into clinical evaluation and practice, in order to improve the cure rates for all children with cancer,” noted Gregory Reaman, MD, Chair of the Children’s Oncology Group. “Only research cures childhood cancer. On behalf of my colleagues in the Children’s Oncology Group and the children with cancer and their families who are our partners in clinical research, we thank our Congressional leaders.”

“On behalf of CureSearch, we applaud the steadfast leadership of Representatives Chris Van Hollen and Deborah Pryce and their colleagues in the House who through the passage of this bill have made finding the cure for childhood cancer an urgent national priority,” said Stacy Pagos Haller, Executive Director, CureSearch.

Companion legislation in the United States Senate (S.911), sponsored by Senator Jack Reed (D-RI), cleared the Senate Health, Education, Labor and Pensions (HELP) Committee unanimously in November, 2007. The Senate version of the Conquer Childhood Cancer Act currently has 63 co-sponsors; a full Senate floor vote on the bill is expected this summer.
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About CureSearch

CureSearch seeks to conquer childhood cancer, conquer it sooner, conquer it fully and for all time. Through public education, advocacy and fundraising, the National Childhood Cancer Foundation, a non-profit 501 (c) (3), supports the work of the Children’s Oncology Group (COG), the world’s premier pediatric cancer research collaborative. This network of more than 5,000 healthcare professionals dedicates their lives to finding answers and sharing results. More than 12,000 children are diagnosed with cancer each year, and more than 40,000 children and adolescents are currently in treatment. Only research cures cancer. For more information, visit www.CureSearch.org.

2 comments:

sahel said...

hey,
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Anonymous said...

I am writing to invite you to join the People Against Childhood Cancer (PAC2) group. We also have the Petition to Raise Awareness of Childhood Cancer. It now stands at over 16,000 signatures. CureSearch, Alex's Lemonade and LIVESTRONG have been kind enough to write about the petition effort.


In early August, PAC2 was started, and we currently have nearly 1100 members, including the Chairman of the Board and other representatives from CureSearch, Make-A-Wish, Curing Children's Cancer Fund,Alex's Lemonade Stand, the Head of Pediatric Oncology at Duke, the Head of Sarcoma at John Hopkins, reps from TX Children's, and many other childhood cancer fundraising organizations. The majority of our members are parents writing on CarePages, Caring Bridge, or blogs, expanding the network exponentially. Most have thousands of readers of their sites.

Our mission is simple, raise awareness of childhood cancer; we are not a fundraising organization and have no plans to become one. Frankly there are enough. We are a grassroots effort to band people together to fight our common enemy. We hope to become a "clearinghouse" for parents to join the fight, find out how/where/when they can raise funds and who to support, advocate as a group, and share ideas about how to raise awareness. We are inviting representatives from all childhood cancer fundraising organizations to be part of the effort to promote their events, spread awareness of their mission, and, quite frankly, to spread awareness of PAC2 in return. I would appreciate your consideration and look forward to hearing from you.



Join People Against Childhood Cancer - http://curechildhoodcancer.ning.com
Sign the Cure Childhood Cancer Petition - http://www.thepetitionsite.com/1/CureChildhoodCancer

Kathi Clarke
www.caringbridge.org/visit/kelsiemckune